medical research

Posted by: 19chris51

18th Jan 2011 11:21am

My son is disabled with sca (Spina Cerebella Ataxia) there is no medical research going on for this as so few are diagnosed with it in Australia, so please medical research

Parsimony

24th Apr 2011 08:12pm

I work with Lifeline Queensland for their disability services. At the moment there is a once in a lifetime opportunity for people with a disability and their families and carers to support a fundamental change.
The Productivity Commission has recently released an interim report on Disability Support. This proposes that rather than the current broken disability support system that is based on charity and poverty that a new system is put in place that is supports people with a disability according to their need.
This will mean that families will have the opportunity to be a family member rather than be their son or daughters carer because there is no other option.
Chris that doesn't mean that immediately there will be more research into your son's unique condition but there will be greater chances of meaningful research occurring however this new needs based scheme should mean that you and other families should be better supported earlier and prevented from going into crisis. Goodluck, John

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