children with special needs

Posted by: pammy

15th Aug 2011 01:25pm

parental support for parents with live with children who have special needs.
This can put so much stress and pressure on family, relationships, Schools, support groups. Where is the government in all of this with regard to funding to help ??

whosthekat

16th Nov 2011 10:03pm

Hi I have 2 beautiful boys both diagnosed with autism, the older also has both verbal & motor dyspraxia. I appreciate the assistance I do get from the government, but it really isn't enough. I cannot work as I need to be here at home for the boys and also be available for speech therapy/OT/paediatrician/psychologist appointments and anything else that may crop up along the way. My partner, bless him, works his butt off to support us but we barely scrape by, at the moment we are actually kinda going backwards a bit financially, but according to the government he earns too much for me to even qualify for a family health care card, let alone carer's payment! It really is a struggle, especially when you constantly get people saying "are you sure they're both autistic, doctors do tend to over-diagnose things these days" - really unhelpful comments like that can do alot of damage to someone already struggling to deal with the problems associated with caring for special needs kids. I am lucky my boys are reasonably high functioning, I cannot imagine what it must be like for those who are in a worse situation and I know there are lots of you out there! Chins up all, we'll get there in the end!

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